I have convinced my doc that I shouldn't have knee surgery for the time being. I'll be getting a knee brace & we'll see how I do with that. If that works ok-ish then I can hold off on the knee surgery consult. I do need a hand consult to see what/if anything ought to be done for them. I am going to ask my genetisit who said he'd refer me to anything I needed) to send me to the hand clinic at Mayo, between the osteoarthritis, the EDS, the Poland's & the neuropathy I am past what my GP wants/can deal with. I think it makes the most sense to see if the hand clinic will see me & try to deal with all the issues than get 1 doc to deal with each. I could have the neuro for neuropathy, a rhum for the OA, a othro for the PS & the GP & rhum for EDS, really that seems a bit much & a bit scattered.
I'm still doing the arthitis pool class at the gym & it's going well. I can't seem to go below 600-300-600 for the gabapentin
Showing posts with label gabapentin. Show all posts
Showing posts with label gabapentin. Show all posts
22 March 2009
08 March 2009
I guess...
I'm still quiet because I don't have much to say, lol.
Hmm, let's see. Amelia has been back in school thanks to us getting a carpool thing going. We've got it set up to go til the end of March, by then it should be warm enough that we can walk. She's still loving pre-school. Her parent/teacher conference is coming up in another week, I know I'll hear all about how she doesn't use scissors well & her pencil grip is incorrect. With the utmost respect I say "Bite me.", really she may never do them correctly, I don't. Also I have noticed a few things over the years that have got me wondering if she has development disorder, ASD or ADHD, something in there. If she does it's pretty mild, but there are quirks to her behavior that make me pause, & there are quite a few of them. Overall she's fine, but I am thinking of having her evaluated to see if she does have something so we can get a plan to cope set up. Thankfully where I live evaluations are free. I'll be doing this come summer.
I am the same as ever. I decided not to see the ortho about knee surgery. I don't have enough of a support system going to have the help I would need while I recover. I'm going to ask for a knee brace instead. I am still tapering down on the gabapentin & it's going well, I'm just yesterday down to 300-300-600. I am dropping things more, but I'll adapt & deal with it.
I am still knitting & getting better. I've done a scarf, washcloth, a toy hat, some pins & am working on another scarf & going to try my hand at a sock soon. I think it's helping to keep my hand strength while I reduce the gabapentin.
I got my tax $ & bought a nice pair of shoes since I've given up on orthotics. I've gotten 2 of them so far & they suck. They drive me nuts & I can't see any benefit when I use them. So I decided quality footwear is what I need.
Hmm, let's see. Amelia has been back in school thanks to us getting a carpool thing going. We've got it set up to go til the end of March, by then it should be warm enough that we can walk. She's still loving pre-school. Her parent/teacher conference is coming up in another week, I know I'll hear all about how she doesn't use scissors well & her pencil grip is incorrect. With the utmost respect I say "Bite me.", really she may never do them correctly, I don't. Also I have noticed a few things over the years that have got me wondering if she has development disorder, ASD or ADHD, something in there. If she does it's pretty mild, but there are quirks to her behavior that make me pause, & there are quite a few of them. Overall she's fine, but I am thinking of having her evaluated to see if she does have something so we can get a plan to cope set up. Thankfully where I live evaluations are free. I'll be doing this come summer.
I am the same as ever. I decided not to see the ortho about knee surgery. I don't have enough of a support system going to have the help I would need while I recover. I'm going to ask for a knee brace instead. I am still tapering down on the gabapentin & it's going well, I'm just yesterday down to 300-300-600. I am dropping things more, but I'll adapt & deal with it.
I am still knitting & getting better. I've done a scarf, washcloth, a toy hat, some pins & am working on another scarf & going to try my hand at a sock soon. I think it's helping to keep my hand strength while I reduce the gabapentin.
I got my tax $ & bought a nice pair of shoes since I've given up on orthotics. I've gotten 2 of them so far & they suck. They drive me nuts & I can't see any benefit when I use them. So I decided quality footwear is what I need.
20 February 2009
Update
I don't know where the hell my mine has been, but I think I really needed the blog break. I had been popping in from time to time to read other peoples blogs, but I needed to step back a bit I guess.
Anyhow, what's new with me? I'm got done w/PT for general joint crap & now may be heading back for my neck, stupid neck. I am trying to go to the water arthritis class at the gym, hope to do that 2x per week. I modify 90% of it, but the teacher is fine with that.
I got my orthotics & the one sucks so I doubt I'll be wearing them. 2 castings & 4 appts for 1 ok & 1 useless orthotic, lol.
My right knees pops a bit out all the time now so I am going next Friday to see on ortho for a consult to decided if surgery is needed. Dunno if I'd do surgery right now, but I'm up for seeing what ideas this doc might have.
I'm tapering down my Neurontin, I'm sick of the weight gain & I think that's a big knee pain/sublux issue. I was at 900-600-900 & got down to 600-600-600 & am switching to 600-300-600 this week. My goal is 300-300-300 or 300-0-600, something around that. I have gained 25lbs in 18 months & that's got to be killing my knees. My neuropathy is coming back up with these lower doses, but I think I'd rather have the neuropathy.
I'm not dieting, cause I suck at it, but I have cut soda out & am just trying to nibble snacks so much. Also trying to be sensible with what I eat. Like I still get take-away, but last night I got chicken sandwich instead of a burger or if we get drive-thru Toad & I will split a burger & each have our own small fry. Even if I don't loose much, that's ok so long as I stop gaining.
Anyhow, what's new with me? I'm got done w/PT for general joint crap & now may be heading back for my neck, stupid neck. I am trying to go to the water arthritis class at the gym, hope to do that 2x per week. I modify 90% of it, but the teacher is fine with that.
I got my orthotics & the one sucks so I doubt I'll be wearing them. 2 castings & 4 appts for 1 ok & 1 useless orthotic, lol.
My right knees pops a bit out all the time now so I am going next Friday to see on ortho for a consult to decided if surgery is needed. Dunno if I'd do surgery right now, but I'm up for seeing what ideas this doc might have.
I'm tapering down my Neurontin, I'm sick of the weight gain & I think that's a big knee pain/sublux issue. I was at 900-600-900 & got down to 600-600-600 & am switching to 600-300-600 this week. My goal is 300-300-300 or 300-0-600, something around that. I have gained 25lbs in 18 months & that's got to be killing my knees. My neuropathy is coming back up with these lower doses, but I think I'd rather have the neuropathy.
I'm not dieting, cause I suck at it, but I have cut soda out & am just trying to nibble snacks so much. Also trying to be sensible with what I eat. Like I still get take-away, but last night I got chicken sandwich instead of a burger or if we get drive-thru Toad & I will split a burger & each have our own small fry. Even if I don't loose much, that's ok so long as I stop gaining.
16 December 2008
How am I?
Well funny you should ask, I have no clue. Because I am unable to work I am on assistance which means I have to jump thru hoops on their timetable rather than my own.
In the very back of my head I liked to keep the thought that everyone is wrong & I don't have EDS & by next summer I'll be able to take up jogging to loose this bit of weight I gained from the Neurontin. I can be the me that is a size 4 & wears platform heels everywhere. The me I was 4 years ago, sure I hurt & had times when I couldn't walk cause my legs wouldn't work, but hey those days were few & far between.
I went yesterday to the dr to talk about my prognosis since the assistance office sent me a letter saying I had to either get back to work or apply for SSDI. I asked if he thought I ought to apply, expecting him to say either he had no opinion or maybe. He said that normally he doesn't suggest it to people, but in my case it'd be a very good idea too & he'd help any way he could. I feel a bit gutted by that I guess. I'm only on my early 30s, I should be applying for social security. I guess this answers my question as to if I am disabled or not.
In the very back of my head I liked to keep the thought that everyone is wrong & I don't have EDS & by next summer I'll be able to take up jogging to loose this bit of weight I gained from the Neurontin. I can be the me that is a size 4 & wears platform heels everywhere. The me I was 4 years ago, sure I hurt & had times when I couldn't walk cause my legs wouldn't work, but hey those days were few & far between.
I went yesterday to the dr to talk about my prognosis since the assistance office sent me a letter saying I had to either get back to work or apply for SSDI. I asked if he thought I ought to apply, expecting him to say either he had no opinion or maybe. He said that normally he doesn't suggest it to people, but in my case it'd be a very good idea too & he'd help any way he could. I feel a bit gutted by that I guess. I'm only on my early 30s, I should be applying for social security. I guess this answers my question as to if I am disabled or not.
09 October 2008
My Spine
Something, or rather as I suspect a few somethings, are out of place in my neck. I've got 1 do go back in place, but I have to admit reducing dislocations in my spine kinda creeps me out. It's my spine! You should be moving bits of bone around when they are next to your spinal column, what if you broke something in there? Eek, it just seems wrong, but on the plus side it feel better.
Tomorrow I got for my first PT appt, hopefully I get someone who is willing to learn about EDS. I'm the sort of person who always assumes the worst case & that way if it's crappy I'm not disappointed & if it goes well I get to be pleasantly surprised.
I wonder if you can get arthritis of the scapula. Almost any movement of my right shoulder causes some wicked discomfort & tons of clicking there. Since it's not a joint I'm wagering you can't, but I'd love to know what that clicking is. I hope it's not & that can get fixed up somehow. It's my left arm (aka the good arm).
I have decided once I run out I am no longer going to take my potassium supplement. It gags be so bad. Plus I will be switching my multi-vit to something a little stronger. I currently take a children's chewable because it doesn't have iron, iron kills my tummy & binds me up so seriously it's obscene. My mom suggested checking a few brands that might not have the iron in, plus I am going to pick up some more D. I think I'm going to do 400 3x per day.
I also have to decide what I'm going to do about the Neurontin. I was at 900-600-900 for dosing. I dropped to 600-600-600 & my neuropathy is back & it's bad, but I don't feel so brain fuzzed. I've been putting up with the neuropathy to get a break from the fuzzy, but I think I'm going to have to up the dose again. I hate the fuzz, but I can't function with the neuropathy going on, so it's just as debilitating as the fuzz.
Tomorrow I got for my first PT appt, hopefully I get someone who is willing to learn about EDS. I'm the sort of person who always assumes the worst case & that way if it's crappy I'm not disappointed & if it goes well I get to be pleasantly surprised.
I wonder if you can get arthritis of the scapula. Almost any movement of my right shoulder causes some wicked discomfort & tons of clicking there. Since it's not a joint I'm wagering you can't, but I'd love to know what that clicking is. I hope it's not & that can get fixed up somehow. It's my left arm (aka the good arm).
I have decided once I run out I am no longer going to take my potassium supplement. It gags be so bad. Plus I will be switching my multi-vit to something a little stronger. I currently take a children's chewable because it doesn't have iron, iron kills my tummy & binds me up so seriously it's obscene. My mom suggested checking a few brands that might not have the iron in, plus I am going to pick up some more D. I think I'm going to do 400 3x per day.
I also have to decide what I'm going to do about the Neurontin. I was at 900-600-900 for dosing. I dropped to 600-600-600 & my neuropathy is back & it's bad, but I don't feel so brain fuzzed. I've been putting up with the neuropathy to get a break from the fuzzy, but I think I'm going to have to up the dose again. I hate the fuzz, but I can't function with the neuropathy going on, so it's just as debilitating as the fuzz.
28 September 2008
Pins & Needles Hand
So needless to say with my shoulder & elbow having been out my hand is all pins & needles. I just feel like whining, but I'll spare you all. The elbow is back where it belongs & the shoulder is just about right, but just a hair off or I pissed off something in there & that's what's hurting, either way it still hurts.
On to other topics, I am off the Pamelor, couldn't take the side effects anymore. The biggest issue one being my heart going flutter-flutter-BOOM, that feeling wigged me out a bit. The neuro wasn't in the office when I called to say I was going to stop taking it. When her asst called me back she said the neuro didn't have my chart to consult, but if I wanted to try Topamax she'd call it in for me, unless I had kidney stones, which she thought I might. I have had at least a dozen that have passed & have at least 1 in my left kidney right now, so I passed on taking that. So I'll stay on my Neurontin for now. I have been reducing the dose a bit even though I I feel my neuropathy more. I am sick of feeling so tired & the neuropathy I have isn't going to kill me. I need a break from the drug right now & I'm not going to stop taking it, but a reduced dose for a few weeks should be ok.
I go see my GP next week & talk over who/where he'll want to refer me out to & what I want to be referred out to. This is also the appt where I decide if he is a doc I will be keeping. He did blow off a lot of issues I was having thinking they would just go away or something & I was thinking of firing him, but he had been getting a bit better & does seem eager to learn. A doc who can admit he might not know everything under the sun & is willing to not only take literature I bring in, but actually read it is a rare doc. So we'll see how this appt goes, see how much of the EDS data I brought at the last appt he read & if he & I are on the same page.
Oh & on a wonderful note the potty training is going wonderfully!
On to other topics, I am off the Pamelor, couldn't take the side effects anymore. The biggest issue one being my heart going flutter-flutter-BOOM, that feeling wigged me out a bit. The neuro wasn't in the office when I called to say I was going to stop taking it. When her asst called me back she said the neuro didn't have my chart to consult, but if I wanted to try Topamax she'd call it in for me, unless I had kidney stones, which she thought I might. I have had at least a dozen that have passed & have at least 1 in my left kidney right now, so I passed on taking that. So I'll stay on my Neurontin for now. I have been reducing the dose a bit even though I I feel my neuropathy more. I am sick of feeling so tired & the neuropathy I have isn't going to kill me. I need a break from the drug right now & I'm not going to stop taking it, but a reduced dose for a few weeks should be ok.
I go see my GP next week & talk over who/where he'll want to refer me out to & what I want to be referred out to. This is also the appt where I decide if he is a doc I will be keeping. He did blow off a lot of issues I was having thinking they would just go away or something & I was thinking of firing him, but he had been getting a bit better & does seem eager to learn. A doc who can admit he might not know everything under the sun & is willing to not only take literature I bring in, but actually read it is a rare doc. So we'll see how this appt goes, see how much of the EDS data I brought at the last appt he read & if he & I are on the same page.
Oh & on a wonderful note the potty training is going wonderfully!
15 September 2008
It seemed like a good idea at the time
So I decided instead of walking down to pre-school, then back home, then back down to get Toad & finally back home that I would just take my laptop with me & stay downtown. I really forgot to factor in the fact that I have to walk 1 of the 2 speeds I can walk or walking is very painful & my odds of falling are higher, but my child doesn't like to walk either of those speeds. Add to that the weight of the laptop pulling on my neck & I guess I should be happy I didn't fall. I am in agony & sitting in the coffee shop I just to work in. I am now trying to decide if I would do better staying here & walking home carrying this thing or if I'd do better resting for a tiny bit, walking home with the laptop, then going back down to pick up Toad & walking back. On Wednesday I'll just bring a paperback with & read.
On a slighty brighter note I have a school girl crush on the cute guy at the Y. I know cause I wore mascara to take Toad to pre-school, lol. I think I'll take this second to say that I am a single mom, not sure if I've mentioned this before, but I may have. Toad's biological father is not in the picture at all other than to send a few $ most months & we only dated for a few months. I just don't have the energy to deal with a relationship right now, I'm just trying to get thru life one day at a time. But just because I don't want a relationship doesn't mean I can't feel cute & flirt with someone, so I am flirting with the cute guy at the Y, cause it's fun.
On a very cool note I got a wheelchair for free this weekend! We went to run a few errands this weekend & stopped by Roomie's Dad's house. (Ok, this may get confusing.) Over the summer Roomie's sister, dad, mom & step-father have a ton of yardsales & most things get stored at Roomie's dad'd house. The step-father works as a trucker & is known as the guy who "dumpster dives", most of the time it's just stuff set out at the curb along his route or things people will ask him if he wants before they would throw out rather than climbing in dumpsters. So anyhow we stopped by & in the garage with the leftover yardsale stuff was a wheelchair, so I announced I was taking it. It's the first chair on this page. It's not new nor is it s perfect fit, but it's darn close & it's free. The armrests come off which I have to have or I can't comfortably reach the wheels to push myself, the legrests come off too which is nice since I often leg propel myself.
Oh & because I haven't change the topic enough times let's do it once more! I am switching meds from Neurontin to Pamelor & it's been interesting so far. I was on 600mg in the am & afternoon & 900mg in the evening for the Neurontin. I am now at 600mg 3x per day. As for the Pamelor I am at the 10mg 1x per day at night. I am finding I remember my dreams more, feel a bit less drowsy in the day, those are the good effects. The bad ones are I've become a total flamiong bitch (which I do hope will mellow back to normal bitchy) & the leg itchies have come back in force. I have scabs all over my legs from itching, ugh. It's like RLS except instead of needing to move I get itchy. So hopefully as I ramp up on the Pamelor it will go away again. I do like feeling more alert & dreaming again, but not if it means I have to be an obnoxious bitch who keeps itching her legs til they bleed. (btw: Neurontin=gabapentin & Pamelor=nortriptyline)
On a slighty brighter note I have a school girl crush on the cute guy at the Y. I know cause I wore mascara to take Toad to pre-school, lol. I think I'll take this second to say that I am a single mom, not sure if I've mentioned this before, but I may have. Toad's biological father is not in the picture at all other than to send a few $ most months & we only dated for a few months. I just don't have the energy to deal with a relationship right now, I'm just trying to get thru life one day at a time. But just because I don't want a relationship doesn't mean I can't feel cute & flirt with someone, so I am flirting with the cute guy at the Y, cause it's fun.
On a very cool note I got a wheelchair for free this weekend! We went to run a few errands this weekend & stopped by Roomie's Dad's house. (Ok, this may get confusing.) Over the summer Roomie's sister, dad, mom & step-father have a ton of yardsales & most things get stored at Roomie's dad'd house. The step-father works as a trucker & is known as the guy who "dumpster dives", most of the time it's just stuff set out at the curb along his route or things people will ask him if he wants before they would throw out rather than climbing in dumpsters. So anyhow we stopped by & in the garage with the leftover yardsale stuff was a wheelchair, so I announced I was taking it. It's the first chair on this page. It's not new nor is it s perfect fit, but it's darn close & it's free. The armrests come off which I have to have or I can't comfortably reach the wheels to push myself, the legrests come off too which is nice since I often leg propel myself.
Oh & because I haven't change the topic enough times let's do it once more! I am switching meds from Neurontin to Pamelor & it's been interesting so far. I was on 600mg in the am & afternoon & 900mg in the evening for the Neurontin. I am now at 600mg 3x per day. As for the Pamelor I am at the 10mg 1x per day at night. I am finding I remember my dreams more, feel a bit less drowsy in the day, those are the good effects. The bad ones are I've become a total flamiong bitch (which I do hope will mellow back to normal bitchy) & the leg itchies have come back in force. I have scabs all over my legs from itching, ugh. It's like RLS except instead of needing to move I get itchy. So hopefully as I ramp up on the Pamelor it will go away again. I do like feeling more alert & dreaming again, but not if it means I have to be an obnoxious bitch who keeps itching her legs til they bleed. (btw: Neurontin=gabapentin & Pamelor=nortriptyline)
11 September 2008
Important Request
If anyone knows what a normal damn body is supposed to feel like could they please let me know? Thanks.
So yesterday I went the neuro to talk about the other not migraine headaches I get. I get a lot of types of headaches. For migraines I get aura-then-migraine migraines plus I also get just-the-aura-then-a-slight-pressure migraines (those don't hurt). For my not migraines I get the daily never goes away at the base of my skull headache that always hurts just the levels vary. Sometimes (3-12x times a month) I get a worse headache at the back/base of my head. It lasts for 2-3 days each time (every now & again it will last for a 5 or so days). It comes often when the weather changes or if I've slept poorly or if the universe has just decided I look cute when I'm in agony. These headaches are ones I can sort of function with. I have lived with daily pain for my whole life so I am very good as pushing on when in pain. I usually wear tinted glasses, keep my fluids up & can run an errand or stuff like that, but I am very slow while I do it & have to lay on the floor a lot. Seems my neuro thinks these are migraines as well. Her thought is if it hurts like a bitch, makes your tummy feel like hell & like is a bit like a dagger thru your brain that you have a migraine. I thought if it didn't feel like my other migraines that it wasn't a migraine, guess that's not true. So now I have a dx of 3 types of migraine, lovely.
So just for the record let's look at what I've been dx'ed with this year alone that I thought were normal medical stuff I thought the whole world had to deal with but turns out a freaky things most of the world will never deal with, shall we? Good, here's the list:
2 new types of Migraine
EDS
PFPS-Really was EDS
Arthralgia-Due to EDS
Neuropathy
Not to mention the falls I've had to be treated for
Plus before this past year I have a few things wrong as well. Let's take a look at that list now.
Poland's Syndrome
Asthma
Migraine w/Aura
OA of both hands
OA of both knees
Kidney Stones
Scolosis
Chronic Severe Constipation
MVP w/Murmur
Irregular Heartbeat
So yeah if anyone knows what a normal body feels like please do let me know so I can figure out if I have 80 other things wrong that I thought were totally normal. Ugh.
Ok, so I feel a touch better now that I got all that bitching done, lol. Anyhow since I guess it turns out I am still getting migraines at least once a week my migraines aren't under control. My neuro wants to switch me from the Neurontin to Nortriptyline. So this week I was already trying to wean down to 600mg 3x per day on the Neurontin since I wanted to see if I could reduce the side effects, but not have the symptoms return. So now that it was 3 days already at the 600 3xs I have added in the Nortriptyline last night at 10mg. I will do 10mg at night for a week then I will take 20mg at night for a week, then 30mg at night from then on. I am to try to wean down the neurontin slowly & see if I can get off it without symptoms returning, if I can't that's ok. 300mg 3x per day would be ok & 600 3x per day would be acceptable. She also wrote me an rx for Vicodin & I got the drug lecture. I told her than if I take 1/2 a Vicodin with a low dose muscle relaxer I can sleep & usually wake with a much less painful headache if not returned to my normal low level pain. So if she could write for that she could give me less of the Vicodin. She did give me the muscle relaxer & the Vicodin as well. It's just a few of each, but when I can't sleep at night from the pain it's nice to know I have something I can do other than cry. When I get sent over to PT she wants them to do some work with my neck. I do wonder if there isn't a structural issue due to the ribcage issues & the missing muscles. I wonder if I am using shoulder muscles for things they “shouldn’t” be used for & there for pissing off my neck muscles. Oh & just for fun I have a history of mild mania & am on a tricyclic antidepressant (Nortriptyline), so life could get very interesting.
I’ll be posting about Toad’s school & how it went this week later today.
So yesterday I went the neuro to talk about the other not migraine headaches I get. I get a lot of types of headaches. For migraines I get aura-then-migraine migraines plus I also get just-the-aura-then-a-slight-pressure migraines (those don't hurt). For my not migraines I get the daily never goes away at the base of my skull headache that always hurts just the levels vary. Sometimes (3-12x times a month) I get a worse headache at the back/base of my head. It lasts for 2-3 days each time (every now & again it will last for a 5 or so days). It comes often when the weather changes or if I've slept poorly or if the universe has just decided I look cute when I'm in agony. These headaches are ones I can sort of function with. I have lived with daily pain for my whole life so I am very good as pushing on when in pain. I usually wear tinted glasses, keep my fluids up & can run an errand or stuff like that, but I am very slow while I do it & have to lay on the floor a lot. Seems my neuro thinks these are migraines as well. Her thought is if it hurts like a bitch, makes your tummy feel like hell & like is a bit like a dagger thru your brain that you have a migraine. I thought if it didn't feel like my other migraines that it wasn't a migraine, guess that's not true. So now I have a dx of 3 types of migraine, lovely.
So just for the record let's look at what I've been dx'ed with this year alone that I thought were normal medical stuff I thought the whole world had to deal with but turns out a freaky things most of the world will never deal with, shall we? Good, here's the list:
2 new types of Migraine
EDS
PFPS-Really was EDS
Arthralgia-Due to EDS
Neuropathy
Not to mention the falls I've had to be treated for
Plus before this past year I have a few things wrong as well. Let's take a look at that list now.
Poland's Syndrome
Asthma
Migraine w/Aura
OA of both hands
OA of both knees
Kidney Stones
Scolosis
Chronic Severe Constipation
MVP w/Murmur
Irregular Heartbeat
So yeah if anyone knows what a normal body feels like please do let me know so I can figure out if I have 80 other things wrong that I thought were totally normal. Ugh.
Ok, so I feel a touch better now that I got all that bitching done, lol. Anyhow since I guess it turns out I am still getting migraines at least once a week my migraines aren't under control. My neuro wants to switch me from the Neurontin to Nortriptyline. So this week I was already trying to wean down to 600mg 3x per day on the Neurontin since I wanted to see if I could reduce the side effects, but not have the symptoms return. So now that it was 3 days already at the 600 3xs I have added in the Nortriptyline last night at 10mg. I will do 10mg at night for a week then I will take 20mg at night for a week, then 30mg at night from then on. I am to try to wean down the neurontin slowly & see if I can get off it without symptoms returning, if I can't that's ok. 300mg 3x per day would be ok & 600 3x per day would be acceptable. She also wrote me an rx for Vicodin & I got the drug lecture. I told her than if I take 1/2 a Vicodin with a low dose muscle relaxer I can sleep & usually wake with a much less painful headache if not returned to my normal low level pain. So if she could write for that she could give me less of the Vicodin. She did give me the muscle relaxer & the Vicodin as well. It's just a few of each, but when I can't sleep at night from the pain it's nice to know I have something I can do other than cry. When I get sent over to PT she wants them to do some work with my neck. I do wonder if there isn't a structural issue due to the ribcage issues & the missing muscles. I wonder if I am using shoulder muscles for things they “shouldn’t” be used for & there for pissing off my neck muscles. Oh & just for fun I have a history of mild mania & am on a tricyclic antidepressant (Nortriptyline), so life could get very interesting.
I’ll be posting about Toad’s school & how it went this week later today.
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