So needless to say with my shoulder & elbow having been out my hand is all pins & needles. I just feel like whining, but I'll spare you all. The elbow is back where it belongs & the shoulder is just about right, but just a hair off or I pissed off something in there & that's what's hurting, either way it still hurts.
On to other topics, I am off the Pamelor, couldn't take the side effects anymore. The biggest issue one being my heart going flutter-flutter-BOOM, that feeling wigged me out a bit. The neuro wasn't in the office when I called to say I was going to stop taking it. When her asst called me back she said the neuro didn't have my chart to consult, but if I wanted to try Topamax she'd call it in for me, unless I had kidney stones, which she thought I might. I have had at least a dozen that have passed & have at least 1 in my left kidney right now, so I passed on taking that. So I'll stay on my Neurontin for now. I have been reducing the dose a bit even though I I feel my neuropathy more. I am sick of feeling so tired & the neuropathy I have isn't going to kill me. I need a break from the drug right now & I'm not going to stop taking it, but a reduced dose for a few weeks should be ok.
I go see my GP next week & talk over who/where he'll want to refer me out to & what I want to be referred out to. This is also the appt where I decide if he is a doc I will be keeping. He did blow off a lot of issues I was having thinking they would just go away or something & I was thinking of firing him, but he had been getting a bit better & does seem eager to learn. A doc who can admit he might not know everything under the sun & is willing to not only take literature I bring in, but actually read it is a rare doc. So we'll see how this appt goes, see how much of the EDS data I brought at the last appt he read & if he & I are on the same page.
Oh & on a wonderful note the potty training is going wonderfully!
Showing posts with label pamelor. Show all posts
Showing posts with label pamelor. Show all posts
28 September 2008
Pins & Needles Hand
Labels:
EDS,
ehlers-danlos,
elbow,
gabapentin,
hands,
meds,
neurontin,
Neuropathy,
nortriptyline,
pain,
pamelor,
potty training,
Toad
22 September 2008
The Sahara Lives in my Mouth
So the doc said I might have a bit of dry mouth with the Pamelor, but wow this is insane. It's as though I have a bunch of those suckers the dentist puts in your mouth in there it's so dry. I am moving it from a pm med to an am med since it really doesn't make me tired in the least. I'm not sure if it's making me hyper or if it's the lower amt of Neurontin that is doing it. Either way I am enjoying being awake, not groggy.
The bad news is that I don't think it's going to work well for the neuropathy cause that is coming back. I am so itchy, which I used to be before Neurontin, & the pins & needles are coming back too. The itchy is only on my lower legs & arms, plus the top of my chest, which is where it was before so I know it's not an allergic reaction. It might just be that the Pamelor just hasn't built up in my system. Oh & the eating is just ridiculous. I might gain 40lbs in the next week from how I am eating & you just can't help it. So far there is no effect on the headaches either, but it's only been 12 days & only 10mg.
So I'm stilling giving it a go, but I'm not sure how well it's working or going to work.
On a happy note Toad started using the potty! (If you don't have a child you may not get how wonderful this is, but imagine you had to handle items soaked in urine & feces 6-18x per day for 3 years & then you'll know why this is such joy.)
The bad news is that I don't think it's going to work well for the neuropathy cause that is coming back. I am so itchy, which I used to be before Neurontin, & the pins & needles are coming back too. The itchy is only on my lower legs & arms, plus the top of my chest, which is where it was before so I know it's not an allergic reaction. It might just be that the Pamelor just hasn't built up in my system. Oh & the eating is just ridiculous. I might gain 40lbs in the next week from how I am eating & you just can't help it. So far there is no effect on the headaches either, but it's only been 12 days & only 10mg.
So I'm stilling giving it a go, but I'm not sure how well it's working or going to work.
On a happy note Toad started using the potty! (If you don't have a child you may not get how wonderful this is, but imagine you had to handle items soaked in urine & feces 6-18x per day for 3 years & then you'll know why this is such joy.)
Labels:
disabled,
doc,
itchy,
meds,
neurontin,
Neuropathy,
nortriptyline,
pamelor,
potty training,
Toad
15 September 2008
It seemed like a good idea at the time
So I decided instead of walking down to pre-school, then back home, then back down to get Toad & finally back home that I would just take my laptop with me & stay downtown. I really forgot to factor in the fact that I have to walk 1 of the 2 speeds I can walk or walking is very painful & my odds of falling are higher, but my child doesn't like to walk either of those speeds. Add to that the weight of the laptop pulling on my neck & I guess I should be happy I didn't fall. I am in agony & sitting in the coffee shop I just to work in. I am now trying to decide if I would do better staying here & walking home carrying this thing or if I'd do better resting for a tiny bit, walking home with the laptop, then going back down to pick up Toad & walking back. On Wednesday I'll just bring a paperback with & read.
On a slighty brighter note I have a school girl crush on the cute guy at the Y. I know cause I wore mascara to take Toad to pre-school, lol. I think I'll take this second to say that I am a single mom, not sure if I've mentioned this before, but I may have. Toad's biological father is not in the picture at all other than to send a few $ most months & we only dated for a few months. I just don't have the energy to deal with a relationship right now, I'm just trying to get thru life one day at a time. But just because I don't want a relationship doesn't mean I can't feel cute & flirt with someone, so I am flirting with the cute guy at the Y, cause it's fun.
On a very cool note I got a wheelchair for free this weekend! We went to run a few errands this weekend & stopped by Roomie's Dad's house. (Ok, this may get confusing.) Over the summer Roomie's sister, dad, mom & step-father have a ton of yardsales & most things get stored at Roomie's dad'd house. The step-father works as a trucker & is known as the guy who "dumpster dives", most of the time it's just stuff set out at the curb along his route or things people will ask him if he wants before they would throw out rather than climbing in dumpsters. So anyhow we stopped by & in the garage with the leftover yardsale stuff was a wheelchair, so I announced I was taking it. It's the first chair on this page. It's not new nor is it s perfect fit, but it's darn close & it's free. The armrests come off which I have to have or I can't comfortably reach the wheels to push myself, the legrests come off too which is nice since I often leg propel myself.
Oh & because I haven't change the topic enough times let's do it once more! I am switching meds from Neurontin to Pamelor & it's been interesting so far. I was on 600mg in the am & afternoon & 900mg in the evening for the Neurontin. I am now at 600mg 3x per day. As for the Pamelor I am at the 10mg 1x per day at night. I am finding I remember my dreams more, feel a bit less drowsy in the day, those are the good effects. The bad ones are I've become a total flamiong bitch (which I do hope will mellow back to normal bitchy) & the leg itchies have come back in force. I have scabs all over my legs from itching, ugh. It's like RLS except instead of needing to move I get itchy. So hopefully as I ramp up on the Pamelor it will go away again. I do like feeling more alert & dreaming again, but not if it means I have to be an obnoxious bitch who keeps itching her legs til they bleed. (btw: Neurontin=gabapentin & Pamelor=nortriptyline)
On a slighty brighter note I have a school girl crush on the cute guy at the Y. I know cause I wore mascara to take Toad to pre-school, lol. I think I'll take this second to say that I am a single mom, not sure if I've mentioned this before, but I may have. Toad's biological father is not in the picture at all other than to send a few $ most months & we only dated for a few months. I just don't have the energy to deal with a relationship right now, I'm just trying to get thru life one day at a time. But just because I don't want a relationship doesn't mean I can't feel cute & flirt with someone, so I am flirting with the cute guy at the Y, cause it's fun.
On a very cool note I got a wheelchair for free this weekend! We went to run a few errands this weekend & stopped by Roomie's Dad's house. (Ok, this may get confusing.) Over the summer Roomie's sister, dad, mom & step-father have a ton of yardsales & most things get stored at Roomie's dad'd house. The step-father works as a trucker & is known as the guy who "dumpster dives", most of the time it's just stuff set out at the curb along his route or things people will ask him if he wants before they would throw out rather than climbing in dumpsters. So anyhow we stopped by & in the garage with the leftover yardsale stuff was a wheelchair, so I announced I was taking it. It's the first chair on this page. It's not new nor is it s perfect fit, but it's darn close & it's free. The armrests come off which I have to have or I can't comfortably reach the wheels to push myself, the legrests come off too which is nice since I often leg propel myself.
Oh & because I haven't change the topic enough times let's do it once more! I am switching meds from Neurontin to Pamelor & it's been interesting so far. I was on 600mg in the am & afternoon & 900mg in the evening for the Neurontin. I am now at 600mg 3x per day. As for the Pamelor I am at the 10mg 1x per day at night. I am finding I remember my dreams more, feel a bit less drowsy in the day, those are the good effects. The bad ones are I've become a total flamiong bitch (which I do hope will mellow back to normal bitchy) & the leg itchies have come back in force. I have scabs all over my legs from itching, ugh. It's like RLS except instead of needing to move I get itchy. So hopefully as I ramp up on the Pamelor it will go away again. I do like feeling more alert & dreaming again, but not if it means I have to be an obnoxious bitch who keeps itching her legs til they bleed. (btw: Neurontin=gabapentin & Pamelor=nortriptyline)
Labels:
disabled,
EDS,
ehlers-danlos,
flirting,
gabapentin,
itchy,
meds,
neurontin,
nortriptyline,
pain,
pamelor,
school,
single mom,
Toad,
wheelchair
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