Social Security

I got my letter from Social Security with their decision. I was approved. I know some areas take ages to process claims so I guess I live in an area that doesn't have a bad backlog since I only applied at the end of Dec. I think having gone to Mayo Clinic for my diagnosis & the fact the geneticist there stated flat out it will never get better & will only go down hill helped me get approved.

What I am glad for (apart from being able to pay my bills now, lol) is that when I have a good day that energy doesn't have to be sucked up by a job so that I have none left for Toad. That was really hard for me, I would work a 3 hour shift & then spend the rest of the day either just flopped on the sofa or napping on it & she would have the tv on. Now we are able to sit & read together or play together. On Wed after pre-school we were able to stop at the fast-food joint & have lunch together & I realized it's the 1st time just the 2 of us have ever eaten somewhere together. I'm glad this means my daughter gets a mom rather than a woman who can't do anything with her, I can't do a lot, but at least now I can do some stuff.

How am I?

Well funny you should ask, I have no clue. Because I am unable to work I am on assistance which means I have to jump thru hoops on their timetable rather than my own.

In the very back of my head I liked to keep the thought that everyone is wrong & I don't have EDS & by next summer I'll be able to take up jogging to loose this bit of weight I gained from the Neurontin. I can be the me that is a size 4 & wears platform heels everywhere. The me I was 4 years ago, sure I hurt & had times when I couldn't walk cause my legs wouldn't work, but hey those days were few & far between.

I went yesterday to the dr to talk about my prognosis since the assistance office sent me a letter saying I had to either get back to work or apply for SSDI. I asked if he thought I ought to apply, expecting him to say either he had no opinion or maybe. He said that normally he doesn't suggest it to people, but in my case it'd be a very good idea too & he'd help any way he could. I feel a bit gutted by that I guess. I'm only on my early 30s, I should be applying for social security. I guess this answers my question as to if I am disabled or not.

'Cause one can never have enough stress

I'm filing for disability this month. When one is born with a genetic disorder what is the 1st day of disability? When I had to stop working full time almost 3 years ago, but did work part time (never coming close to the $ amt that counts as gainful employment) what was my last day of employment? If filling this stuff out drives me to drink can I also add substance abuse to the list of impairments?