Well I had to cancel my water PT appt & make it for the 10th. The swimsuit I ordered may or may not be here in time & since the appt is on Monday I needed to cancel. It was much harder than I thought it would be to find a swimsuit this time of year. I searched the net & being a very full busted gal I can't wear a thin strapped top or I'll look like a stripper. Plenty of places had great suits if I wanted to spend $80-150, other places had awesome deals if I was a size 2 or a 24, some places had wicked suits if I didn't mind wearing a 2 piece, but the EDS has given me such horrible striae that no one should have to see that I figure I should skip those. I did find a nice suit that should work great, the color was even in my second choice black (I'd have loved a red one, that was the 1st choice).
On a side tangent I am tired of being unwell, tired of all the appts, tired of feeling like crap, tired of not being able to do whatever I want. Hell, I'm even tired of not being able to drink Diet Coke anymore (migraine trigger). I'm tired of being flat broke. I'm tired of being a size 14 rather than the size 4 I ought to be. I'm tired of the pain, I don't want to be in pain all the damn time. I'm just plain tired.
Showing posts with label tired. Show all posts
Showing posts with label tired. Show all posts
05 October 2008
Colds
Ya know, it's funny, I don't get colds often & when I do they are gone pretty quick. Toad brought a cold home from school last week & it's been kicking my ass. I guess when you're already tired all the time & achy all over adding a cold to the mix really just makes you feel like a blob. I went to bed last night at 8.30. I can't take cold meds cause they cause my heart to race so fast it feels like it will explode, so I'm just stuck suffering thru it.
On a good note the drama with getting my pain pills cleared up & I finally have them. I don't think I mentioned that, but I'm not sure, so I'm sorry if I'm repeating a bunch. My doc rx'ed some extended release pain pills, he said some insurances won't cover them. I go to fill it & the pharm says that my insurance is canceled. I got some paperwork in a few days late & so my insurance was canceled on 30/9, but it should have been reinstated on 1/10. My insurance was, but the rx part wasn't for some reason. So I call, the chick there says it should be good, but she's gotta call the other part & get them to switch it. So they didn't get it fixed til the next day. I couldn't get to the pharm til just before 5, they re-run the rx & the med isn't covered. At this point I consider banging my head on the wall. The awesome chick at the pharm calls over to get the rx changed to another form of the drug. My doc isn't in, so she get transferred to the talk to a random doc line. They don't answer & she gets transferred to someone to leave a message, she tells them it's 5 to 5 & doesn't want to leave a message, she wants to talk to a doc since this is a Friday. The person on the other line says they will have the doc call back, that they will give him the message personally. I wait a bit & then tell the pharm I am going home, to call me when they figure out/hear back. She calls me later & tells me the random doc said if I was in pain, I should just go to the E/R & they could decide if I needed pain meds. (BTW to that doc, Thanks asshole. I think I know who that doc is too, there is one doc there who doesn't believe in giving pain meds.) I am now lining my head up with the wall to start banging, but the pharm chick says she decided to just call the E/R & see if the doc there would help. It was a doc I'd seen before when I hurt my foot. He was fine with writing for me thankfully. I told her it was too late for me to get them that day but I would pick them up the next day (Sat) & thanked her a lot. So tomorrow I'll call my doc & check that this matches up with what he was going for, which I'd think it would.
Hm, I guess this post was less about my cold & more about the pain meds. Well one more thing on the cold front, this is the first "big" cold Toad has had & while there is more whining than one person should have to listen to, she's been dealing very well with it. There is no pre-school tomorrow, which is kinda good cause she would have to miss it. I just hope she's ok by Wed for school, I'd feel bad if she missed a whole week. My roomie finally got the cold yesterday & she's out of sick time at work so this week is gonna be a hell week for her.
On a good note the drama with getting my pain pills cleared up & I finally have them. I don't think I mentioned that, but I'm not sure, so I'm sorry if I'm repeating a bunch. My doc rx'ed some extended release pain pills, he said some insurances won't cover them. I go to fill it & the pharm says that my insurance is canceled. I got some paperwork in a few days late & so my insurance was canceled on 30/9, but it should have been reinstated on 1/10. My insurance was, but the rx part wasn't for some reason. So I call, the chick there says it should be good, but she's gotta call the other part & get them to switch it. So they didn't get it fixed til the next day. I couldn't get to the pharm til just before 5, they re-run the rx & the med isn't covered. At this point I consider banging my head on the wall. The awesome chick at the pharm calls over to get the rx changed to another form of the drug. My doc isn't in, so she get transferred to the talk to a random doc line. They don't answer & she gets transferred to someone to leave a message, she tells them it's 5 to 5 & doesn't want to leave a message, she wants to talk to a doc since this is a Friday. The person on the other line says they will have the doc call back, that they will give him the message personally. I wait a bit & then tell the pharm I am going home, to call me when they figure out/hear back. She calls me later & tells me the random doc said if I was in pain, I should just go to the E/R & they could decide if I needed pain meds. (BTW to that doc, Thanks asshole. I think I know who that doc is too, there is one doc there who doesn't believe in giving pain meds.) I am now lining my head up with the wall to start banging, but the pharm chick says she decided to just call the E/R & see if the doc there would help. It was a doc I'd seen before when I hurt my foot. He was fine with writing for me thankfully. I told her it was too late for me to get them that day but I would pick them up the next day (Sat) & thanked her a lot. So tomorrow I'll call my doc & check that this matches up with what he was going for, which I'd think it would.
Hm, I guess this post was less about my cold & more about the pain meds. Well one more thing on the cold front, this is the first "big" cold Toad has had & while there is more whining than one person should have to listen to, she's been dealing very well with it. There is no pre-school tomorrow, which is kinda good cause she would have to miss it. I just hope she's ok by Wed for school, I'd feel bad if she missed a whole week. My roomie finally got the cold yesterday & she's out of sick time at work so this week is gonna be a hell week for her.
11 September 2008
Important Request
If anyone knows what a normal damn body is supposed to feel like could they please let me know? Thanks.
So yesterday I went the neuro to talk about the other not migraine headaches I get. I get a lot of types of headaches. For migraines I get aura-then-migraine migraines plus I also get just-the-aura-then-a-slight-pressure migraines (those don't hurt). For my not migraines I get the daily never goes away at the base of my skull headache that always hurts just the levels vary. Sometimes (3-12x times a month) I get a worse headache at the back/base of my head. It lasts for 2-3 days each time (every now & again it will last for a 5 or so days). It comes often when the weather changes or if I've slept poorly or if the universe has just decided I look cute when I'm in agony. These headaches are ones I can sort of function with. I have lived with daily pain for my whole life so I am very good as pushing on when in pain. I usually wear tinted glasses, keep my fluids up & can run an errand or stuff like that, but I am very slow while I do it & have to lay on the floor a lot. Seems my neuro thinks these are migraines as well. Her thought is if it hurts like a bitch, makes your tummy feel like hell & like is a bit like a dagger thru your brain that you have a migraine. I thought if it didn't feel like my other migraines that it wasn't a migraine, guess that's not true. So now I have a dx of 3 types of migraine, lovely.
So just for the record let's look at what I've been dx'ed with this year alone that I thought were normal medical stuff I thought the whole world had to deal with but turns out a freaky things most of the world will never deal with, shall we? Good, here's the list:
2 new types of Migraine
EDS
PFPS-Really was EDS
Arthralgia-Due to EDS
Neuropathy
Not to mention the falls I've had to be treated for
Plus before this past year I have a few things wrong as well. Let's take a look at that list now.
Poland's Syndrome
Asthma
Migraine w/Aura
OA of both hands
OA of both knees
Kidney Stones
Scolosis
Chronic Severe Constipation
MVP w/Murmur
Irregular Heartbeat
So yeah if anyone knows what a normal body feels like please do let me know so I can figure out if I have 80 other things wrong that I thought were totally normal. Ugh.
Ok, so I feel a touch better now that I got all that bitching done, lol. Anyhow since I guess it turns out I am still getting migraines at least once a week my migraines aren't under control. My neuro wants to switch me from the Neurontin to Nortriptyline. So this week I was already trying to wean down to 600mg 3x per day on the Neurontin since I wanted to see if I could reduce the side effects, but not have the symptoms return. So now that it was 3 days already at the 600 3xs I have added in the Nortriptyline last night at 10mg. I will do 10mg at night for a week then I will take 20mg at night for a week, then 30mg at night from then on. I am to try to wean down the neurontin slowly & see if I can get off it without symptoms returning, if I can't that's ok. 300mg 3x per day would be ok & 600 3x per day would be acceptable. She also wrote me an rx for Vicodin & I got the drug lecture. I told her than if I take 1/2 a Vicodin with a low dose muscle relaxer I can sleep & usually wake with a much less painful headache if not returned to my normal low level pain. So if she could write for that she could give me less of the Vicodin. She did give me the muscle relaxer & the Vicodin as well. It's just a few of each, but when I can't sleep at night from the pain it's nice to know I have something I can do other than cry. When I get sent over to PT she wants them to do some work with my neck. I do wonder if there isn't a structural issue due to the ribcage issues & the missing muscles. I wonder if I am using shoulder muscles for things they “shouldn’t” be used for & there for pissing off my neck muscles. Oh & just for fun I have a history of mild mania & am on a tricyclic antidepressant (Nortriptyline), so life could get very interesting.
I’ll be posting about Toad’s school & how it went this week later today.
So yesterday I went the neuro to talk about the other not migraine headaches I get. I get a lot of types of headaches. For migraines I get aura-then-migraine migraines plus I also get just-the-aura-then-a-slight-pressure migraines (those don't hurt). For my not migraines I get the daily never goes away at the base of my skull headache that always hurts just the levels vary. Sometimes (3-12x times a month) I get a worse headache at the back/base of my head. It lasts for 2-3 days each time (every now & again it will last for a 5 or so days). It comes often when the weather changes or if I've slept poorly or if the universe has just decided I look cute when I'm in agony. These headaches are ones I can sort of function with. I have lived with daily pain for my whole life so I am very good as pushing on when in pain. I usually wear tinted glasses, keep my fluids up & can run an errand or stuff like that, but I am very slow while I do it & have to lay on the floor a lot. Seems my neuro thinks these are migraines as well. Her thought is if it hurts like a bitch, makes your tummy feel like hell & like is a bit like a dagger thru your brain that you have a migraine. I thought if it didn't feel like my other migraines that it wasn't a migraine, guess that's not true. So now I have a dx of 3 types of migraine, lovely.
So just for the record let's look at what I've been dx'ed with this year alone that I thought were normal medical stuff I thought the whole world had to deal with but turns out a freaky things most of the world will never deal with, shall we? Good, here's the list:
2 new types of Migraine
EDS
PFPS-Really was EDS
Arthralgia-Due to EDS
Neuropathy
Not to mention the falls I've had to be treated for
Plus before this past year I have a few things wrong as well. Let's take a look at that list now.
Poland's Syndrome
Asthma
Migraine w/Aura
OA of both hands
OA of both knees
Kidney Stones
Scolosis
Chronic Severe Constipation
MVP w/Murmur
Irregular Heartbeat
So yeah if anyone knows what a normal body feels like please do let me know so I can figure out if I have 80 other things wrong that I thought were totally normal. Ugh.
Ok, so I feel a touch better now that I got all that bitching done, lol. Anyhow since I guess it turns out I am still getting migraines at least once a week my migraines aren't under control. My neuro wants to switch me from the Neurontin to Nortriptyline. So this week I was already trying to wean down to 600mg 3x per day on the Neurontin since I wanted to see if I could reduce the side effects, but not have the symptoms return. So now that it was 3 days already at the 600 3xs I have added in the Nortriptyline last night at 10mg. I will do 10mg at night for a week then I will take 20mg at night for a week, then 30mg at night from then on. I am to try to wean down the neurontin slowly & see if I can get off it without symptoms returning, if I can't that's ok. 300mg 3x per day would be ok & 600 3x per day would be acceptable. She also wrote me an rx for Vicodin & I got the drug lecture. I told her than if I take 1/2 a Vicodin with a low dose muscle relaxer I can sleep & usually wake with a much less painful headache if not returned to my normal low level pain. So if she could write for that she could give me less of the Vicodin. She did give me the muscle relaxer & the Vicodin as well. It's just a few of each, but when I can't sleep at night from the pain it's nice to know I have something I can do other than cry. When I get sent over to PT she wants them to do some work with my neck. I do wonder if there isn't a structural issue due to the ribcage issues & the missing muscles. I wonder if I am using shoulder muscles for things they “shouldn’t” be used for & there for pissing off my neck muscles. Oh & just for fun I have a history of mild mania & am on a tricyclic antidepressant (Nortriptyline), so life could get very interesting.
I’ll be posting about Toad’s school & how it went this week later today.
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