28 April 2009

My head, my head, my head...

I am so tired of these headaches! I have a constant headache, had it for over 20 years now, then the migraines for variety & then there's the other headache. My constant headache is a low hum of discomfort at the base of my skull, the other headache is a fucking icepick jammed right in there. The only thing that helps it is to have someone grab both sides of my head & make like you want to pull my head off, you must pull straight up, that stops the pain for 5-15 minutes. Or I take my index, middle & ring fingers of both hands & jam them in to the point of dislocation & that works until I stop, the second I stop the pain is back. Really the center of the pain is an area the size of a quarter, 50 cent piece, then radiates pain out from that. It's not all the time, maybe 2-3 times a week.

Anybody got any ideas? Pain meds don't do anything for this other than make me sleepy, migraine meds do nothing, my laying down MRI shows all is good & I doubt I can get an upright. My neuro & gp both referred me over to PT & I'll be getting a neck brace for when it's bad to see if that helps. I wonder about Chiari or CCI, but with a happy MRI I doubt I can get anyone to look further.

24 April 2009

Social Security

I got my letter from Social Security with their decision. I was approved. I know some areas take ages to process claims so I guess I live in an area that doesn't have a bad backlog since I only applied at the end of Dec. I think having gone to Mayo Clinic for my diagnosis & the fact the geneticist there stated flat out it will never get better & will only go down hill helped me get approved.

What I am glad for (apart from being able to pay my bills now, lol) is that when I have a good day that energy doesn't have to be sucked up by a job so that I have none left for Toad. That was really hard for me, I would work a 3 hour shift & then spend the rest of the day either just flopped on the sofa or napping on it & she would have the tv on. Now we are able to sit & read together or play together. On Wed after pre-school we were able to stop at the fast-food joint & have lunch together & I realized it's the 1st time just the 2 of us have ever eaten somewhere together. I'm glad this means my daughter gets a mom rather than a woman who can't do anything with her, I can't do a lot, but at least now I can do some stuff.