Showing posts with label breast. Show all posts
Showing posts with label breast. Show all posts

30 October 2008

Poland's Syndrome Stuff

It seems that the main search that brings people here is Poland's Syndrome, but yet I don't end up posting as much on that as I do the EDS. I think at dx & during the pre-teen/teen years people want to know they aren't alone with PS & want info. So I will try to make a effort to help y'all out.

I was dx'ed at birth, my mom is still trying to decide if it's her fault or not, honestly as an adult I don't think it's anyone's fault. I do not blame anyone for my PS, it's just something that is. As a baby/toddler/young kid I really didn't feel or act different than any other child except for a few things. I obviously didn't crawl, between the PS & the EDS I think that's a given. My handwriting was the worst in the class, I have PS on the right & am a righty. So for parents don't blame yourself, it's wasted energy & there is no reason your young child can't so anything anybody else is doing.

As for teens I got nothing for the guys, just for the girls as far as how to blend in. For you girls go buy a chicken cutlet, ok not a real one but one of those fake silicone boobs you can stuff in your bra. (They really do remind me of a piece of uncooked chicken.) You can pick up a cheap pair on Amazon or eBay, you don't need the fancy ones, just the $20-ish ones will work fine. Your boob size will change a few times so no sense in spending a ton just to toss them out in a year. Also if you're wearing an opaque bra you don't even need them to match your skin. These things last for about 2-3 years. Oh, buy the set, not the singles, that way you always have a back-up boob incase you need it. When/if you buy a new set keep the old ones, you can stack the older-smaller one on the new larger one if you grow again & that way don't have to rush to get a new set right away.

As for current stuff we are trying to help out one of my fingers. The middle finger on my right hand has curved a lot. It was a bit wonky from birth, but it's gotten really wonky as I've aged. I'm not sure how much is due to PS & how much is due to EDS or if it's just the freaky mix of having both. I got a splint to sleep in to help out.